Friday, August 30, 2013

Doctor is FINALLY making changes

Early this morning I had a Doctor appointment. I have been looking forward to this appointment for 2 weeks. See 2 weeks ago I had a terrible flare up, fever (102.7), mouth sores, abdominal cramping, diarrhea. Fellow chronies you know this is a typical flare up. My problem is I had 3 great months (April, May &June). I didn't wake up sick once & now it seems like I'm right back into my old habits. Feel good for a week then I'm sick for 10 days & it's a terribly vicious cycle. So July flare ups weren't this bad, but now they are back and I hate every moment of them. I also started a new job & I can't take off but I am not productive & I feel awful on a daily basis so I'm struggling. So today I went to my doctor and made him well aware that everything is no longer good, I'm fearful of my disease and the fact that we haven't controlled it yet. I made him aware of my new job & the symptoms I have, along with the number of accidents I've had post surgery, which I still find to be so embarrassing. I feel like with my doctor you have to become stern if you want results otherwise he doesn't take me seriously. So today I was stern & shocker he decided that we need to reevaluate my medicines. So I was ordered a stool test, a MR enterography, a specific blood test (test Remicade effectiveness),added an all natural iron vitamin, & added Ciproflaxcin to my list of current medicine. I go back on September 10 for results and the new plan. Lets hope we have answers as to why I'm having these flares up & a new method to fight my disease. I am just so sick of being sick. Those 3 months were amazing & I will hold onto those moments as long as possible. However, being so sick again is making those great months seem like such a distant memory, almost like it was all just a dream. Crohn's Casualties please give me your suggestions on how to handle the day to day activities while battling a flare up...I've added Imodium as needed to help make it so I have less accidents when I know I can't make it to a bathroom for a period of time as per my doctors instructions. We all know curling up on the curling up on the couch to indulge in a good memory is preferable solution, but I do not have this option with work. Thank you for any suggestions in advance. I and my bowels appreciate it. I hope everyone enjoys their Labor Day weekend. Take Care